Hi Everyone! I can't believe we've already hit 2014, 2013 just flew by. I know I haven't written since December 10th, but I've been going through a lot. Trying new medications, having more testing done and coming to a (for me at least) big decision.
I've decided to take a break from my Boston doctors. They've just about given up on helping me, pretty much saying that they're isn't much else they can do. I've retaken tests (some hitting double digit times) and retried medications and I'm sick and tired of the round robin game they're playing. At this point I'm relying on my PCP (thank god she has been amazing, always there for me) and am going to change my strategy. For 15 years I've relied on Western medicine, being a good patient, doing exactly what the doctors say, verbatim. Yet it's gotten me absolutely no-where, except frustrated, angry, and placed me in constant pain and dehydrated because the diarrhea never stops. And they seem to want to put all the blame on me, like this whole situation I'm in is my fault, yea not going to take the abuse anymore. Might be time to call in the butt kicking ninjas…
Now since I'm choosing a different path, my mom and I have been researching Eastern medicine. We're looking into teas and massage and other things that might help. I'm not saying I'm giving up Western medicine completely, like I said I'm sticking with my primary and in April I'll go see my gastro in Boston. Hopefully by then I'll have found the proper combination of Western and Eastern Medicine to at least alleviate some of my symptoms. Not looking for miracle cures, just looking for a little bit of relief. My PCP and I even discussed some "alternate" forms of medication (I'll talk more about that in another post).
As for my fibromyalgia, since the Nortriptyline and Cymbalta only made me sicker my PCP is placing me on a muscle relaxant with liquid Tylenol for now. I start it on Monday, we'll see how it all works out.
So for 2014, I've made the decision to not let the medical field push me around or make me feel like this is all my fault. I'll take into account what they suggest but in the end if they try me on something I've already tried before and it failed, not trying it again. I'm going to take control, I'm tired of feeling helpless. Alright butt kicking ninjas lets go kick some ass!
