Frustration to the max

I know, I've said that I would be better about blogging and here we are about a month later and I haven't written a darn thing. My excuse, I honestly haven't had any energy lately. The surgery didn't work at all. I was hoping for a little relief and yet here we are, sans relief. I can't even begin to explain how having constant bouts of diarrhea is crappy (pun intended). Not only do I have those bouts but every once in a while I'm throwing up on top of it. Some days I just want to curl up in ball and not get up.  I know I said I was going to be optimistic and stay positive, but lately I have really been feeling down and a bit depressed. 

The one good thing is that my new nutritionist came up with a diet that could possibly help. I'm not going to hold my breath, but if it helps even a little I'll call it a win. This new way of eating that I'll be starting is based off the FODMAPs diet. Now normally this is a diet used by people with IBS or a stomach illness that is similar, but in about 75% of people who follow the diet see a change in their symptoms. It takes about 6-8 weeks to see any real change and I just officially started yesterday, so we will have to wait and see. 

At this point, I'll try anything before medication. The next step my doctors want to take is putting back on already-tried-and-failed medications. Some of these medications I've tried three or four times, I don't see how trying them again will help and it really kind of annoys me. It's like "we cant find the problem, so lets start from square one and see it all fail again". Sorry not interested. 90% of those medications caused more problems than actually help. Not putting myself through that crap again, thank you very much. 

So, I do promise to try and be more productive. Half the time I mean to write and end up just staring at the computer screen. I get so tired that I can't even conjure up a well thought out sentence, let alone an entire blog post.

Here's to hoping for better days!

Until next time

More Fun News...

Well, I thought I would give a little update since my last post. Things haven't been going as well as expected. My dumping episodes have increased to about 6-7 times a day. Because I haven't been able to keep the proper nutrition in my system, I've lost a lot of weight in a little bit of time (about 15 lbs. since my surgery). That was a bit more than I originally expected in only five weeks. It's a bit unnerving.

Now on my last post I talked about having thrush. Since then I've gotten an infection that has caused blisters to form on my lips and under my bottom lip and above my top lip. My doctor thinks its in relation to my immune system not being up to par from my chronic illness and still healing from my surgery. It's really painful and uncomfortable and can take a while to clear up depending upon what type of infection I have. We are trying one method (an antibiotic cream that I put on the blisters 3 times a day), but if that doesn't seem to be helping in the next two days I have to go back and we'll try another script.

So with everything going on I'm a bit frustrated right now. Things are not going quite as I'd hoped, but it is what it is. I'm seeing my surgeon next Monday since things aren't going so well (I originally was going to see him Oct. 2nd and he still has me seeing him then too). I'm hoping that we might at least be able to bring the dumping episodes down from 6-7 times a day to 4-5 times a day. However, I'm also in complete understanding that could just be a pipe dream at this point.

Trying to stay positive, and hoping this cream helps my very painful blistering infection. Fingers crossed!